Lydia did not sleep well last night, and so she was much more emotional today. She was missing home last night, and her night time nurse told me that she needed "reorienting" a few times. When I asked her what that meant, she told me that it meant that Lydia didn't know where she was or why she was there. When her nurse asked her what might calm her and how she could help her to fall back asleep, Lydia replied, that she'd like her mommy to sing to her. Heart breaking moments. I would like to be able to always be there for her, to love her and sing to her, but I cannot be. I need rest. The boys need me. Home needs me. Ultimately, we must continually entrust Lydia to the care of the One who is always with her, who never leaves her nor forsakes her. (At Holland Bloorview, Lydia always has a close friend or family member with her, so she is well taken care of. )
Today at lunch, Lydia's Doctor encouraged her to drink all of her water, instead of getting any in her g tube. When I talked to her about this, encouraging her to give it a try, she responded: "Yeah! Then I'll be like normal people." How unfortunate that her perceptions now allow her to see herself as different, and that some filter in her mind causes her to view normal as better. Normal is just a silly, relative word. We are all unique creations. Lydia drank about half of her water, and then tried drinking the rest throughout the afternoon. Her drinking is improving, but she still needs more stamina.
On a different child, thank you for your prayers for Sam. His foot is healing. He can now put a bit of weight on it, and it has not bled since Monday.
Tomorrow brings in another weekend. Weekends have new meaning for us as a family, because we can be the Herrle5 together at home. Thank you for respecting our family's privacy, and not just dropping in to visit. We know there are many who wish us well, and pray for us regularly. Thank you, in all these regards.
Today I shared Zeph 3:17 with Lydia, and she loved the idea of God singing over her. "Really?" she asked with bright eyes. Really!
The Lord you God is with you; He is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing.
May we all hear that singing when we need comforting and calming.